The Care of Congenital Myopathy A Guide for Families
by Sarah Foye
The Care of Congenital Myopathy: A Guide for Families is a comprehensive care guide for families and people with congenital myopathy. It incorporates recommendations from the Consensus Statement on Standard of Care for Congenital Myopathies. The family guide is testimony to many of the challenges, joys, concerns, and triumphs that are typical for those living a not-so-typical life.