Calmer: Medical Events with Cognitively Impaired Children

Rated 4.67/5 based on 5 reviews
This short book offers a toolbox of workable strategies described in parent, not psychologist, terms that are designed to reduce medical trauma in your special child. The strategies are drawn from the work of the author with her son who suffers from a rare condition called Hunter Syndrome, sees ten specialists, four therapists, has a weekly infusion, and is in a clinical trial. More

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About Melissa Hogan

Melissa Hogan is a lawyer by training, writer by passion, and advocate by necessity. She is the creator and founder of SavingCase.com, a website dedicated to her son Case's fight against Mucopolysaccharidosis II or Hunter Syndrome, a rare disease affecting an estimated 2,000 boys worldwide. Case was miraculously diagnosed at the age of two after Melissa's mother, a registered nurse, saw an episode of Mystery Diagnosis about a boy with Hunter Syndrome. Since that time, Melissa has refocused her experience as a lawyer and strategic consultant to researching, writing, and speaking about topics so that newly diagnosed families do not have to "recreate the wheel" when being thrust into this new life of caring for a child with rare disease. From lists of home infusion supplies to therapy options, research strategies to fundraising, as well as updates about her son's participation in the first intrathecal clinical trial for Hunter Syndrome, Melissa has connected families from around the world. Since it began in early 2010, SavingCase has had visitors from every state in the U.S. as well as over 100 other countries. In addition to the website, she also uses other social media strategies such as Twitter and Pinterest to support families, raise awareness, and bring the condition down to a personal level through the eyes of one affected family.

Reviews

Review by: Courtney Walker on Sep. 06, 2012 :
This was such an incredible tool to address one of the many issues a family faces with a new diagnosis. It's easy for doctors to say, "Why is your child acting like that?!" and not validate their fears and concerns when the child is expected to see 12 or more clinicians every year. This was a huge help for me to be able to help my daughter. Thanks for this!
(reviewed within a week of purchase)

Review by: Beth York on Sep. 03, 2012 :
Forgot to give the book 5 stars! Fastastic!!
(reviewed the day of purchase)

Review by: Beth York on Sep. 03, 2012 : (no rating)
What a STELLAR contribution to the complex world of medicine involving children and anxious parents! This book cuts to the chase and can be read quicky, is packed with practical, sensible, and customizable advice and strategies, and should be given to every parent of a medically complicated child. Every child is vastly different in their needs, wants, triggers, and reactions and this book is PACKED with information that will only spur parents and medical professionals on to work with each individual child. It will also empower parents to advocated effectively for their children in the medical community. GREAT RESOURCE!!
(reviewed the day of purchase)

Review by: Carol Rucker on May 06, 2012 : (no rating)
This book was an eye opener. It has giving me unbelievable simple details of why this method works. I have seen changes already and I can't believe I have been doing the exact opposite for such a long time. It still feel kinda strange but what an exciting feeling. I have wonder for so long, and as hard as I have tried, why must there be continue stress, in our family life in dealing with medical events, education and even relaxtion time. Believe it or not, right now relaxtion or fun time is our most difficult learning skill. Prehaps its because I've always lecture to by daughter to be brave and act like this stress is nothing, but with no real tools to work with other than past scary memories.
Thank You Melissa you have been a God send.
(reviewed within a month of purchase)

Review by: Daniella Vandepeer on April 16, 2012 :
Wow. What a fantastic real life read. We too have a son with MPS II Hunters, and I have already taken some of the advice from Calmer, and adapted around our son with all the medical appointments we attend it really helped all of us be that little more calmer. What I love most about this book is how real Melissa has been. All of these strategies are interchangeable to each situation you are in and prove to work, by putting the work in you really do see results. This I kinda already knew, but Melissa's book just really helped me mould my own way and helped me remember how much of a learning curve life is. This book now sits on my book shelf and my family will refer to it as and when we need to. Thank you Melissa.
(reviewed within a month of purchase)

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