This story is one that so many people can relate to, by this I mean anyone that is a parent. Anyone that has a niece or nephew, brother or sister. I decided to write this book because it is a story that needs to be told, and I want to share it, with you, just what it’s like to have a child with a disability, the consequences and life changes that affect the entire family and of course mainly the impact its had on my life.
What I discovered during these traumatic years is that everyone takes on a different approach to what life throws at them. These words I have written, are from the heart and are what I feel about having a life full of upheaval and heartache, the stress of having a child with a disability, the pain and anguish that is always at your door and then just when you think its ok, you receive another blow, something that just blows your world apart again. And so the journey begins.
My name is Karen and in 1993 a beautiful baby girl was born, my second daughter whom I named Christie Lee, she was born at 38 weeks and delivered by caesarian section, she weighed 81b 5oz I was told she was a normal healthy baby and for the first two or three weeks, they were right. Christies legs and feet were quite turned I thought, so I took her to a pediatrician, who in turn sent us to a specialist at the hospital, I was told she would need splints to keep her feet in place and she would need these for twelve months, and so our journey begins.
Christie was in and out of hospital from the age of two months for one thing or another some minor things such as Croup, Gastric, chest infections etc plus our weekly trips to the Royal to have her splints checked but as every Mother knows and I believe we have a sixth sense when it comes to our children, she was never 100% well, there was always a little voice nagging at me saying she’s just not quite right. Christie became quite ill from the age of 18 months she started to develop what they call stridor, and when Christie was at rest she used to do what we would consider snoring, and she would sound louder than a full grown man after a night on the beer.