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Melissa Hogan is a lawyer by training, a writer by passion, and an advocate by necessity. She is the founder and Past President of Project Alive, a nonprofit foundation that supports research and advocacy in Mucopolysaccharidosis II or Hunter Syndrome, a rare disease affecting an estimated 2,000 boys worldwide including her youngest son. She wrote a blog for many years that was read in over 100 countries worldwide, sharing on topics ranging from rare disease research, caring for a child with special needs, fundraising, faith, and writing. She currently writes at melissajhogan.com about the intersection of her faith and caring for a child with special needs. She regularly speaks at rare disease conferences on topics such as patient outcomes research, clinical trials, patient engagement, and social media use in rare disease.