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I am a mother, wife, daughter, sister, friend and so much more. I write because it brings me satisfaction, I help others because it makes me feel good inside and out. These two things together, define my purpose in life...because I can.
We all need motivation, which is Nourishment for the soul...like rain to the earth...This is my aim, pure and simple.
on Oct. 25, 2017 :
This book showed me I'm not alone and that there are others out there with hydrocephalus. Even though you've learned and experienced more since writing this book, the experiences shared in it have helped me. They've helped me as I've been transitioning to living independently and making my own healthcare decisions. Your book has helped me learn to be an advocate for my healthcare when others around me may not understand my situation. I'm learning to be my own voice now thanks to reading experiences from other hydro warriors like you.
(reviewed 11 months after purchase)
on Oct. 29, 2015 :
I was held captive with every word well written & easy to understand not like talking with doctors. I enjoyed the dialog sections which brought memories which were very descriptive & I found being born with congenital hydrocephalus very accurate. I believe she touched on every point even the short term memory issues but her long term was intact. The weather & how it rules us & the journal keeping which is one thing I stress to the people who I chat with through Facebook .
This author doesn't miss a beat talking about how she wonders about the What if's questions which we have no control but it doesn't stop us from thinking about. The denial you go through before you finally change from "Why me to "Why Not Me" I just loved it from start to finish & wanting more. But I know for more of the story what it would entail & I wouldn't wish this on anyone. Well let me change that maybe some of the doctors because they have no idea what we experience with this condition or at time disbelieve us.
(reviewed the day of purchase)
on Oct. 14, 2015 :
I love this book. It is written in the first person and tells the story of the authors struggles with her medical condition, Hydrocephalus. I really enjoyed the personal touch and emotion the author displayed in her story. I could really feel the struggle she was going through and was pulling for a positive outcome with every page turn.
This book is a great read for anyone who is dealing with hydrocephalus, whether they be a patient, a parent of a hydro child, or anyone who wants to learn more about this condition. This inspirational story shows that anything is possible if you keep fighting and never give up hope.
I too have hydrocephalus and will be writing my story very soon. I may be a little biased with this review because I not only felt her story from the words on the page, but I felt it also because I went through it as well. In any case, I think this book could be enjoyed by all who read it. I hope to see more from this author in the future.
(reviewed the day of purchase)