MARC RAMIREZ is a staff writer for The Dallas Morning News, where he specializes in narratives, character profiles, social/cultural phenomena and ordinary people facing universal challenges. Previously, he reported for The Seattle Times, Phoenix New Times, The Wall Street Journal and The Phoenix Gazette. He has a bachelor’s degree in American Studies from the University of Notre Dame and a master’s degree in journalism from the University of California, Berkeley.
Rapidly and surely, Zach Thibodeaux is going blind — the result of a condition called cone-rod dystrophy, a degenerative disease that is destroying the cells of his retina and for which there is no cure. At the age of 8, he’s coping with questions that are hard to imagine: How do you prepare for a life of blindness? What would you want to see? What would you do?