Melissa Hogan


Melissa Hogan is a lawyer by training, writer by passion, and advocate by necessity. She is the founder and current President of Project Alive, a nonprofit foundation that supports research and advocacy in Mucopolysaccharidosis II or Hunter Syndrome, a rare disease affecting an estimated 2,000 boys worldwide. The foundation's blog at, as well as Melissa's personal blog at, have regular visitors from over 100 countries worldwide, sharing on topics ranging from rare disease research, caring for a child with special needs, fundraising, faith, and writing. Melissa is also frequent writer at The Huffington Post, The Mighty, and Rare Disease Report, in addition to the above blogs, as well as a songwriter in her spare time. Her song ALIVE, co-written with #1 hit songwriter Mark Irwin, was a finalist and the runner-up People's Voice selection in the 2015 International Songwriting Competition. She regularly speaks at rare disease conferences on topics ranging from clinical trials, patient engagement, and social media use in rare disease.

Where to find Melissa Hogan online


Watch the story behind the book
Calmer was inspired by the author's experience in caring for her son Case, diagnosed at 2 years old with the rare disease Hunter Syndrome. Meet Case and hear more about his journey and their fight to save him.


Calmer: Medical Events with Cognitively Impaired Children
Price: $4.99 USD. Words: 9,250. Language: English. Published: April 2, 2012. Categories: Nonfiction » Health, wellbeing, & medicine » Children’s health, Nonfiction » Parenting » Childhood psychology
(4.75 from 4 reviews)
This short book offers a toolbox of workable strategies described in parent, not psychologist, terms that are designed to reduce medical trauma in your special child. The strategies are drawn from the work of the author with her son who suffers from a rare condition called Hunter Syndrome, sees ten specialists, four therapists, has a weekly infusion, and is in a clinical trial.

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