Long Days Last Days comes out of my years as co-founder of Sage Case Management, which works to help people in complex medical situations by advising, advocating, coordinating and scheduling on their behalf. We act as intermediaries between patients, families, and the health community (hospitals, skilled nursing facilities, board-and-care establishments, general and specialist MDs, visiting nurses, caregiving and home health agencies). LDLD comes also out of my years of teaching, researching, and writing about the history of science and medicine. My most recent book in this vein is a large-scale cultural history of noise entitled Making Noise: From Babel to the Big Bang and Beyond (Zone, 2011). I am also a public arts consultant and a widely published poet and translator.
Called to the side of someone critically or chronically ill, what can you do, what will you say? With short alphabetical entries on 200 topics (Checklists, Mutual Peril, Sex, Waiting), LDLD advises on emergency and perplexity, noise and loss. Treating the full ecology of the bedside--its calendar and ethics, its terrain and emotional climate--LDLD empowers all caregivers in days tedious or trying.