All Star Press - Books that Change Lives is proud to announce the release of Diagnosis: Rare Disease by Denise Crompton.
"Wow, breadth & depth: The various chapters of Diagnosis: Rare Disease cover every aspect of the impact of a rare disease on Individuals..." ~ Bob Gorman - Independent Research Professional. More
Denise Crompton's "Diagnosis: Rare Disease" gives a heartbreaking exposé of what life is like for families that have a member with a rare disease. Crompton details the journey of 13 families, including her own, who have one or more children with a rare disease called Mucolipidosis. The stories wade through the erratic diagnosis process, medical muck-ups, endless pain, a plethora of medical appliances and home modifications, special education, multiple hospitalizations and surgeries, unrelenting stress and the ever-present fear of death.
"The book highlights how stoic, resilient, strong and resourceful these families are," explains Carolyn Paisley-Dew, ISMRD Board Member, Australia. "It underlines the importance of networks to allow these isolated families to support each other and to give them a sense of belonging. Denise Crompton presents these stories in a style that is compassionate and easy to read."
"Diagnosis" is a must-read for medical professionals who wish to learn how to work with families in these difficult situations.
Families dealing with a rare disease will recognize themselves in this book that is destined to be a classic in its field. Published by All Star Press - Books that Change Lives.
Available ebook formats:
Denise Crompton is the author of two books about rare diseases and the struggles that families face who have children affected. Her latest is "Diagnosis: Rare Disease" published by All Star Press - Books that Change Lives.